Imagine you can only see through a straw. And, you are deaf. Scary, isn't it?
For children and adults with Usher syndrome this is a reality and not an experiment. Our son, Henry, was born with Usher syndrome. He is Deaf and is now losing his vision to Usher syndrome. Friends and family are helping us to raise money to benefit Usher research to find a cure, which is on the horizon.
Help Henry See and Hear is a New Jersey non-profit that supports individuals and families affected by Usher Syndrome. We support research, provide information, support and social opportunities for those who are deaf and blind due to Usher Syndrome. Our goal is to not only help Henry but to help every man, woman and child who is losing their sight to Usher Syndrome.